Imagine:  laying on a gurney in a darkened room – Belly exposed and sticky with lubricant – Crying your eyes out in extreme joy because you just got the best news of your entire, sorry life.

We got the fetal echo cardiogram FINALLY got some good news.  We saw a well-respected cardiologist and at first she freaked us by telling us all the really bad things that can go wrong with the heart with this kind of stomach defect and then she said: “But I don’t see that happening here”.  At this stage she can see no obvious signs of a congenital heart defect.  This is amazing news.  Another worry was that the inferior vena cava (the large vein that returns deoxygenated blood to the heart) was interrupted, but she says, from what she could see, it appears normal.  The veins and ventricles she can see all appear to be going in the direction they need to be to the proper places, including 2 to the lungs.  At this moment, she can predict no need for heart surgery.


We are cautiously optimistic, because the baby was uncooperative making it hard to get clear images.  We will get another echo cardiogram in about 7 weeks to confirm her findings.  There are many things she cannot see that can still be a problem for us, like if there is a small or medium hole in the heart, but she was pretty much ruling out catastrophic problems with the heart.

We had no idea what kind of information we were going to get from this test, but ended up getting the best possible news concerning the heart.  We know that we are not out of the woods, but we still feel truly lucky to get such a good report.

Here are some highlights from the report:

Fetal cardiac anatomy is normal.  Cardiac chamber sizes are normal. Ventricular size, wall thickness and function are normal.  It goes on and on about how normal everything looks, then says: Since the fetal heart develops in the first trimester, moderate to major cardiac anomalies can be EXCLUDED.  The Inferior Vena Cava is (and this is a biggie) NOT INTERRUPTED!   FUCK YEAH!!!!!!!!

We can go ahead and celebrate this news about the heart, our biggest worry, but the baby still has a birth defect. Our next concerns are if the bowels are mal-rotated or experiencing a blockage or if the baby has a spleen.  We most likely will not have these answers until after he is born.   Despite this, I need to get new ultrasounds every TWO WEEKS!  We will also meet with a surgeon to talk more about the possibility of bowel mal-rotation and get an MRI to see if we can see any oddities pre-natally.  There is a procedure called LADD’S that can be done to fix the bowels, if this is an issue.  If he turns out to not have a spleen, he would need to be on medications & antibiotics for the rest of his life and could be prone to serious illnesses, like pneumonia and infections. 

In a way, we are back to not knowing what is wrong, but getting to rule out major heart anomalies is a major, very exciting, huge, insane relief.

Thank you so much for all the prayers, awesome vibes, amazing thoughts and esteemed friendship.  Now let’s refocus all this energy and pray to goodness gracious the boy has a damn SPLEEN!


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  1. cocoabean Says:

    Congratulations! That is great news! And here’s hoping there’s lots more to come!

  2. poopiebitch Says:

    I’m so happy for you guys I am crying right now! Okay, time to pray for a spleen!

  3. Becky Says:

    Yaaaaay! He’s waving because he can’t wait to meet you. Little fighter. I’m so happy.

  4. Eleanor Says:

    Hey, baby, you’ve got a lot of speening to do!

  5. lydia k. Says:

    Ah! I just commented after finding your last post (and going through the same thing today), then added you to my Google reader, and saw this updated post. GLORIOUS news… hoping we get the same in a few weeks… we’re scheduled for 4/14 for the echocardiogram… Yay for you and the little guy’s heart!

  6. Sharnee Says:

    I AM SO HAPPY, this is excellent news.

  7. Sam Says:

    I’m so happy for you! Go baby heart! *whew*

  8. Acorn Says:

    YaY for good news!! Beautiful boy!!

  9. Megin Says:

    Congratulations and hugs all around!!

  10. lapintornade Says:

    Wishing the best for you and your family.

  11. Glad to hear that the baby is doing well. I have been told that we ALL start with a hole in the heart and it closes. Be aware that my Dad, who is in his 70’s has a hole in his heart that never fully closed, so even that may not be bad news. I will say a few prayers. Cheers!

  12. Kim Says:

    OH you’re back; and I’m just catching up… so heartwrenching to hear what’s been going on, I’m glad things are going ok now? WHAT A RELIEF. Thinking of you & your family, xoxox

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